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DATASET
1 CAREGIVER RESPONSES Changes in the PLWD affect everyone.xlsx (42.58 kB)
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1 CAREGIVER RESPONSES One of us owes the other.xlsx (51.06 kB)
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2 CAREGIVERS EYE Struggling against insurmountable symptoms.xlsx (66.82 kB)
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2 CAREGIVERS EYE An old child.xlsx (15.94 kB)
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3 HELP SEEKING MAY NOT HELP Medical services.xlsx (41.47 kB)
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3 HELP SEEKING MAY NOT HELP Social and familial networks.xlsx (36.52 kB)
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3 HELP SEEKING MAY NOT HELP Media information.xlsx (13.49 kB)
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3 HELP SEEKING MAY NOT HELP External caregivers.xlsx (22.77 kB)
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4 PERCEPTIONS Dementia should be hidden.xlsx (17.21 kB)
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4 PERCEPTIONS The impact of not knowing.xlsx (15.33 kB)
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4 PERCEPTIONS Caregivers attributions.xlsx (27.63 kB)
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5 BALANCING ACT.xlsx (20.4 kB)
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Project data (anonymised)

This project comprises a study of factors affecting help-seeking among Chinese family caregivers of people living with dementia in China. Data were collected through individual semi-structured interviews and the transcripts analysed via reflexive thematic analysis. Code spreadsheets are uploaded by theme and subtheme, with data provided in both Chinese and English.

This item shows coding for the five themes:

  1. "Caregivers' responses to dementia", which contains two subthemes: "Changes in the person living with dementia affect everyone" and "One of us owes the other".
  2. "Dementia through the caregiver's eye", which contains two subthemes: "An old child" and "Struggling against insurmountable symptoms".
  3. "Help-seeking may not help", which contains four subthemes: "Medical services", "Social and familial networks", External caregivers", and "Media information".
  4. "Perceptions of dementia", which contains three subthemes: "Caregivers' attributions", "Dementia should be hidden", and "The impact of not knowing".
  5. "It's a balancing act", which comprises a single theme with no subthemes.

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    Neuroscience, Psychology and Behaviour

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