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van-oppen-et-al-2023-co-creation-of-a-patient-reported-outcome-measure-for-older-people-living-with-frailty-receiving.pdf (745.09 kB)

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

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posted on 2023-11-15, 15:31 authored by JD van Oppen, TJ Coats, SP Conroy, J Lalseta, V Richardson, P Riley, JM Valderas, N Mackintosh

Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy. This initial development of a novel autonomy outcome measure used co-creation and cognitive interviews, working toward a PROM for Older People living with frailty receiving Acute Care (“PROM-OPAC”). Novel item question stems and responses considering autonomy were devised with lay research partners. Items were examined for content by lay volunteers, and then selected based on relevance, completeness, and accessibility. Retained items were cognitively tested with patient participants. Item selection considered content validity and feasibility and was undertaken collaboratively with lay research partners. The study involved 3 lay research partners and 4 further lay collaborators throughout all stages, and 14 patient participants were recruited for the cognitive interviews. Twenty-two novel items were appraised. Seven were selected for retention. This preliminary PROM-OPAC comprised 7 items to measure autonomy and was intended for administration alongside a function measure to capture meaningful acute healthcare outcomes. Development will continue with quantitative testing and validation.

History

Author affiliation

Department of Cardiovascular Sciences, University of Leicester

Version

  • VoR (Version of Record)

Published in

Journal of Patient Experience

Volume

10

Pagination

237437352311589

Publisher

SAGE

issn

2374-3735

eissn

2374-3743

Copyright date

2023

Available date

2023-11-15

Language

en

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