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Evaluation of the use of a parent questionnaire to provide later health status data: The Panda Study

journal contribution
posted on 2015-10-19, 08:54 authored by David Field, Edi Spata, Thomas Davies, Brad Manktelow, Samantha J. Johnson, Elaine Boyle, Elizabeth S. Draper
Background: Routine comparable outcome data collection relating to the later health status of babies born very preterm has long been considered important, but has not been achieved in the UK. Aim: To test the potential for a parental questionnaire to provide these data for all eligible babies from a geographical population. Methods: Consent for follow-up by questionnaire (using the Parent Report of Children's Abilities-Revised combined with questions derived from the Oxford minimum dataset) was sought for all babies ≤30 weeks of gestation, discharged from a hospital in the East Midlands and Yorkshire regions of the UK, having been born between 1 January 2007 and 31 December 2011. Results: The rate of consent to participate in follow-up showed a steady increase over time to 83.1% in 2011. However, the response rate in terms of completion and return of the questionnaire at 2 years, as a proportion of those eligible, showed little change over time, varying between 42% and 46%. Among those children where a questionnaire was returned, the rate of disability was broadly consistent over time: lowest in 2009, 21.0% (95% CI 16.8% to 25.6%) and highest in 2011, 25.5% (95% CI 21.5% to 31.2%). The instruments used appeared effective with the capability of discriminating between children with physical and/or cognitive disability. Conclusions: The overall response rate in terms of returned questionnaires was disappointing and inadequate to recommend for implementation. It is possible that response rates would have been higher had clinical follow-up been linked to the data obtained from the questionnaires rather than running as a parallel process.

History

Citation

Archives of Disease in Childhood, 2015 (Online First)

Author affiliation

/Organisation/COLLEGE OF MEDICINE, BIOLOGICAL SCIENCES AND PSYCHOLOGY/School of Medicine/Department of Health Sciences

Version

  • AM (Accepted Manuscript)

Published in

Archives of Disease in Childhood

Publisher

BMJ Publishing Group

issn

0003-9888

eissn

1468-2044

Acceptance date

2015-09-21

Copyright date

2015

Available date

2015-10-19

Publisher version

http://fn.bmj.com/content/early/2015/10/12/archdischild-2015-309247.abstract

Language

en

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