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Simplifying research access to genomics and health data with Library Cards.

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posted on 2018-04-23, 09:11 authored by Moran N. Cabili, Knox. Carey, Stephanie O. M. Dyke, Anthony J. Brookes, Marc Fiume, Francis Jeanson, Giselle Kerry, Alex Lash, Heidi Sofia, Dylan Spalding, Anne-Marie Tasse, Susheel Varma, Ravi Pandya
The volume of genomics and health data is growing rapidly, driven by sequencing for both research and clinical use. However, under current practices, the data is fragmented into many distinct datasets, and researchers must go through a separate application process for each dataset. This is time-consuming both for the researchers and the data stewards, and it reduces the velocity of research and new discoveries that could improve human health. We propose to simplify this process, by introducing a standard Library Card that identifies and authenticates researchers across all participating datasets. Each researcher would only need to apply once to establish their bona fides as a qualified researcher, and could then use the Library Card to access a wide range of datasets that use a compatible data access policy and authentication protocol.

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Citation

Scientific Data, 2018, 5, pp. 180039

Author affiliation

/Organisation/COLLEGE OF LIFE SCIENCES/Biological Sciences/Genetics and Genome Biology

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  • VoR (Version of Record)

Published in

Scientific Data

Publisher

Nature Publishing Group

eissn

2052-4463

Acceptance date

2018-01-31

Copyright date

2018

Available date

2018-04-23

Publisher version

https://www.nature.com/articles/sdata201839

Language

en

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