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Uses and abuses of real-world data in generating evidence during a pandemic.

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journal contribution
posted on 2021-02-10, 12:01 authored by Kamlesh Khunti, Francesco Zaccardi, Nazrul Islam, Tom Yates
On 11 March 2020, the World Health Organization declared COVID-19 a pandemic and called for immediate collaborative initiatives for faster access to available data, with a view to generating robust research evidence informing global and local public health policy.1 This urgency has helped a number of national bodies to secure data and their linkages and to provide safe analytical environment for researches to ask important questions, including pseudonymised data linkages, high-throughput computing environment, and access and authentication processes with clear information governance.2,3 Linkages of multiple sources of clinical data within a trusted environment are being granted at a rapid pace and there is a greater provision of access to COVID-19 studies, improved collaboration, expedited governance and ethical approval of studies.4 Some organisations have also been proactive in getting groups together to work collaboratively on relevant research questions which will rapidly benefit clinical care and public health alike.

History

Author affiliation

Diabetes Research Centre, College of Life Sciences

Version

  • AM (Accepted Manuscript)

Published in

Journal of the Royal Society of Medicine

Publisher

SAGE Publications

issn

0141-0768

eissn

1758-1095

Copyright date

2021

Available date

2021-01-18

Spatial coverage

England

Language

eng

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