Caring for Carers: Exploring the Experiences of Male South Asian Spouse Carers of Partners with Dementia

Literature Review

A thematic synthesis was undertaken to explore carer burden amongst South Asian carers of dementia. Databases were systematically searched, and 10 studies were selected for review. Five analytic themes were generated. Psychological burden, including carers’ experiences of loss, stress and carers’ own mental health difficulties. Physical burden, where carers struggle with the need to attend to the physical health needs of their loved one. Carers also experience a deterioration in their own physical health. Financial burden, due to reduced working hours, increased healthcare expenses and dependency. Social burden, relating to reduced social activities due to the demands of the caring role. Relationships burden, where carers experience a change in relationships within the family, caused by their role as a carer. Findings suggest a need for healthcare services to consider the needs of this group of dementia carers, whilst providing care for the individual with dementia.

Empirical Research Study

There is very limited research exploring the caring experiences of male, SA, spouse carers, of a partner with dementia. As a large proportion of people diagnosed with dementia, belong to the South Asian population, it is important to consider the unique experiences and needs of these carers. However, the voice of this population is largely absent from existing literature. This study used semi-structured interviews to gain insight into the caring experiences of male, South Asian, spouses. Eight carers were interviewed, and their data analysed, using thematic analysis. Five major themes were identified: Different gender roles, cultural norms, religious influences on caring, social isolation, and life changing experience. Findings from this study highlighted the importance of paying close attention to this group of carers, so that their needs are not missed within the healthcare system.